How can a GFR drop 30 points with same creatinine level? He was on 80 mg a day and is now at seven and a half mg every other day. 74 Replies. I'm scheduled to have major reconstructive ankle surgery in the next 6-8 weeks. This includes keeping hydrated, cutting sodium, and cutting back on animal protein. I have 18% to 22% kidney function. Im curious to see if anyone ever taken one of the Andros i mentioned above and if kidney damage was done. By the way she also found out I had a bladder infection. Linda. WHAT THE FSGS GURU AT STANFORD TOLD US.... Seeking Membranous Nephropathy support/feedback. The GFR numbers on a blood test are a calculated value based on the blood test for creatinine, along with the age, gender, and race of the individual. Why gluten free for NS if we are not coeliacs. BUT- what do you do??? Yeah, mine was a bit scary. It is of great interest to me: Steven was diagnosed in Sept.07 with MCD. The average drop in the estimated glomerular filtration rate (eGFR) is about 1 cc per minute per 1.73 meters squared per year just on the basis of natural aging. In the last 4 months my GFR has declined over 11 points so now I am at the bottom of stage 3. If your diet includes a lot of sodium and protein, the kidneys are working hard to process it and that can reflect in your GFR score. 31 Replies, I am one of the 1% of ckd patients whose biopsy came back with the diagnosis of Fibrillary GN. Did it continue or did it suddenly stop? 47 Replies, Has anyone had any adverse reactions to Rituximab? I got down to a .5 spill, but my kidney function was still going down. If creatinine goes up, it’s a bad sign. I never have had much of that. A GFR below 15 means you have kidney failure. A GFR below 60 may be a sign of kidney disease. As your serum creatinine is normal, you should not bother about those reports. 2019-12-01) Synopsis and Key Points: Chart of Kidney Glomerular Filtration Rate (GFR) number according to your age, includes table showing chronic kidney disease (CKD) stages. For some people, nsaids can be horrible. In June my gfr went to 59 and my protein was at 4000. It is really hard some days to keep upbeat, but I'm not gonna let it beat me down. I am wondering if the prednisone treatment made his kidneys function worse. About six months ago, in an apparent attempt to improve high proteinurea despite GFR & Creatine in normal ... Then July was 35!! Do you know why? 1 If however there has been a significant decline of GFR since a previous test, this could be an early indicator of kidney disease. I was looking into the studies of 1-ANDRO performed by Texas A N M in 2014 i noticed that the participants GFR dropped almost 16 points. I just wanted to tell l you that my GFR does up alittle and down alittle. Here is the deal- my GFR was 95 in June and my protein spillage was about 1.1... my GFR dropped to 82 in July and my protein went to about .5... My latest test has my GFR at 63 but my protein is now at a .07... So, needless to say, I am going to have an ultrasound! I am currently at 26 and they just put me on prednisone 70mg/ ev. All rights reserved. Chronic Kidney Disease Stages. My GFR has dropped from 53 to 33 in the last six months. I've been stewing about it for the past 24 hrs. The data support consideration of lesser declines in estimated GFR than currently used (such as a 30% reduction over 2 years) as an alternative end point and indicator of … For example, with a first estimated GFR of 30 mL/min/1.73 m 2, percentage changes of 57%, 30%, and 0% over a 2-year baseline period correspond to a last estimated GFR during this period of 13, 21, and 30 mL/min/1.73 m 2, which provides insight as to why greater estimated GFR declines are associated with greater subsequent ESRD and mortality risk. We are not unclear as to whether they will proceed with surgery. He did say that I may have stopped hyperfiltrating and this is more of my true number... I'm just feeling nervous ... Your GFR can fluctuate do to the amount of work the kidneys are doing, If the kidneys are being overworked, the GFR can increase. My protein spill, at its highest, has only been 3g, but my GFR and creatinine has continued to get worse. Just all depends on how well the kidneys are working at the time of the blood test. He was hoping when I got there that I would be able to tell him! As of this past march my creatine went up to 2.0 to 2.2. I’ll admit, I only drink about 30 oz/day. If GFR goes down, it’s a bad sign. GFR Dropped from 70 to 43 in Three Weeks: Why Sudden Drop 2018-06-20 06:06. Hey, thanks for your encouraging reponse. I have 2 cups of coffee in the morning and perhaps a cup of milk each day. 29 Replies, Hi everyone, My wife is 23 years old and was diagnosed with FSGS about a year ago. 4 Replies, Does anyone have more detailed information on this? At this time, you may visit your nephrologist every three months for testing. I'm scheduled to have major reconstructive ankle surgery in the next 6-8 weeks. At age 71 the normal number is 75 as by age the kidney function declines. Back from the brink, an ACTH success story? GFR is the best measure of kidney function but both creatinine and GFR can be useful indicators of your kidney health. Hey, that's a 4-year-old post, but I'm glad you responded to it because you said a 37-point drop in less than 8 months indicates rapid progression of kidney disease. http://www.medicalnewstoday.com/articles /306659.php Do you think this is plausible? Join the conversation! Now it is at 2.6 to 3.0. Renal Failure - Went to my PDr Monday and she ran my kidney function for me in three months my GFR?My GFR dropped from 39 to 27 in just three months. In the meantime he developed a case of gout, now treated with a "hit & run "dosage of 50mg for 5 days. I have altered my diet a lot eliminating bread products chocolate, I have eliminated many of my normal things in addition to reading labels to be carefully to avoid hidden sodium , in the last year. https://www.myvmc.com/investigations/glomerular-filtration-rate-gfr In this article, lets have a discussion. Livestrong recommends NORMAL protein for women is 46 hrs a day ..I try to stay at 30, but pop around higher and lower..as long as I take the AAs I dont lose heart muscle. It appears you have not yet Signed Up with our community. In May, we went to ... GFR is the sum of filtration of all the fluids passing through kidney’s filters called nephrons. That is pretty normal. They have been shown to help slow the progression of kidney disease. This is supposedly so rare, but I'm the third ... I can't just throw in the towel yet :-). Im looking to take a cycle soon. Morse- It is crashing with a big old boom! His GFR was 55 end of Nov. Have a Tigger day! I assume this is all happening due to scarring. This discussion is closed to comments. Up until last summer, I was able to keep the worst disease ... If yours did drop that quickly, what treatment did you do? As you talk about protein in your urine. In general, a “good” GFR number is above 60 and a “good” creatinine number is below 1.2. Up until last summer, I was able to keep the worst disease ... In Jan'08 it was 50.In Feb. it was 60. That has been my problem, since I was diagnosed with FSGS. I have learned so so much reading through discussions. Well then, how does it cause the condition? Patients with some forms of kidney disease such as diabetes and glomerulonephritis can drop by 5 to 10 per year. 15 Replies, I was diagnosed with MCD January 2020. This works ok. All have extremely long waiting lists, so the waiting begins to see which one deems me to be urgent enough to an appointment. I have a chronic kidney failure for almost 4 years now. One more thing. There are things you can do that will (sometimes) slow the progression of kidney disease. Keeping the underlying cause under good control is important too. Surgery with kidney issues is not always that big a deal although precautions must be taken. Patients with some forms of kidney disease such as diabetes and glomerulonephritis can drop … Monitoring and maintaining your blood pressure is also important. You should go to see a kidney doctor to evaluate your condition and find out the … Has anyone out there had major surgery when their kidneys 3 … To start a new discussion in this community, please click here. Are you sure you want to delete this reply? 3. I had a couple of minor surgeries while on dialysis (no kidney function). Well, we will wait and see what the ultrasound shows... Take care all and have a tigger day! Try again. 1-DHEA and Epiandro possibly. I'm sorry this had to happen to you. So I … Urine Albumin - A urine test checks for albumin in your urine. After 9 months of oral prednisone, I am no longer proteinuric. 16 Replies, Does anyone have any statistics on mid and long term survival of transplanted kidneys in adults with FSGS? Levels below 60 mL/min/1.73 m 2 for 3 or more months are a sign of chronic kidney disease. When I first was diagnoised my creatine was at 1.8 for about 3 years. Can dehydration cause a drop of GFR (glomerular filtration rate)? Do not copy or redistribute in any form! My question is- has anyone else had their GFR drop so quickly? Also my creatinine level was 1.95 normal range is 0.50-1.30. I don't know why my kidneys are going as they doctors can't give me a reason. In May my gfr was 90 and my protein was at 5000. I panicked at first, but my neph told me that it could come back up. Older people will have lower normal GFR levels, because GFR decreases with age. Amelie. I am curious about prednisone withdrawal ... 6 Replies, I've had an almost 9 year ride with FSGS, much of which was chronicled on this site. There was a problem adding your email What is GFR and how can we calculate it? Do you have any idea why your kidney function is declining? It's gone from that to in 6 months all of a sudden, now 41. a sustained decrease in GFR of 25% or more and a change in GFR category within 12 months; or a sustained decrease in GFR of 15 ml/min/1.73 m2 per year; take the following steps to identify the rate of progression of CKD: obtain a minimum of 3 GFR estimations over a period of not less than 90 days Always remember, while evaluating a kidney disorder, the most important value we take into consideration is serum creatinine. I've been on Micardis for years and my BP has been very good, up until the last five weeks and now it is up and down, it usually stays around 137/86 which is a lot better than what it been up to 195/110. Don't forget, people have kidney transplants while on dialysis. Normal blood pressure is closer to 120/80 mmHg.1 If, for example, you have high blood pressure (hypertension) and the pressure suddenly drops to below 90/60 mmHg, you are more likely to experience overt symptoms than if it were to drop from, say, 110/70 mmHg. To find GFR, physicians normally obtain the number by using the equation: GFR=140-(your age). Are you on an ACE inhibitor or an ARB? Recently, more and more patients concern the question. Most of the GFR estimations take age in to consideration. Here is the deal- my GFR was 95 in June and my protein spillage was about 1.1... my GFR dropped to 82 in July and my protein went to about .5... My latest test has my GFR at 63 but my protein is now at a .07... My question is- has anyone else had their GFR drop so quickly? I live in a smaller city and there are approximately 4 nephrologist here. GFR changes with age and as per your age, you will not be considered as having CKD. I'm praying my GP takes the lead and coordinates with these specialist. As a matter of fact, severe dehydration can cause the lower kidney function. I have normal BP, glucose, etc. In July my gfr went back up to 64 and my protein was at 4000. 30–44 2 3 3 G4 Severely decreased 15–29 3 3 4+ G5 Kidney failure <15 4+ 4+ 4+ Normal to mildly increased Moderately increased Severely <30 mg/g <3 mg/mmol 30–300 mg/g 3–30 mg/mmol >300 mg/g >30mg/mmol Figure 17|GFR and albuminuria grid to reflect the risk of progression by intensity of coloring (green, yellow, orange, red, deep red). The average drop in the estimated glomerular filtration rate (eGFR) is about 1 cc per minute per 1.73 meters squared per year just on the basis of natural aging. It is very common to see that some patients have same creatinine level, but their GFR has declined. Hey all... Ok... Quick question about GFR falling off the fence just like Humpty Dumpty! Stage 4: GFR 15-29 ml/min. My ankle surgery will take place in a very large city approximately 5 hours drive away from home. My GFR has dropped from 53 to 33 in the last six months. This is something I have been trying to find out from docs, but getting no definite answer from them - since my GFR dropped 40 points in 3 months' time, putting me at stage III! When this first came to light, I saw a Neph, who did some further tests, but nothing else was found. By stage four, you will be considered to have severe kidney loss. A GFR=30 suggests significantly reduced kidney function. Hi A GFR above 60 mL/min/1.73m 2 is usually adequate for most patients and alone is not necessarily indicative of a patient having chronic kidney disease (CKD). ( too little protein for too long is what harms the body..you begin to digest actual body muscle for protein, and this is where real starvation diets harm the heart permanently.) GFR is an indicator of your kidney function. The glomerular filtration rate, or GFR, is a measure of how well your kidneys are cleaning your blood -- taking out waste and extra water. She said it will go away eventually, which it won't as have had the swelling for a year now. She put me on Cipro for the infection. I'm trying not to press the panic button. Ask our community of thousands of members your health questions, and learn from others experiences. During this stage your nephrologist will explain the treatment options for kidney failure, including dialysis, transplantation, and palliative care. Well, he wants to take a slightly closer look.. 17 Replies, I would like to ask about experiences with the period of time right before dialysis/transplant is necessary. I'm 49 and had a GFR of 41% last October, had bloods done at the start of May which showed a 3% decline down to 38% which I'm told is pretty normal but I then had more bloods taken just 4 weeks later (end of May) and was surprised to see that it's now dropped down to 31% which means ive had a 7% drop … In the past 2 years my GFR has been between 50-55. Stay healthy through tips curated by our health experts. You may need other tests or another GFR test if your test result remains low. © 2020 MH Sub I, LLC dba Internet Brands. Hypotension is usually defined as a systolic (upper) value of 90 mmHg and a diastolic (lower) value of 60 mmHg. I was considering 19nor-DHEA. Can I possibly ask any more questions? (Sorry, trying to stay as upbeat as possible with no answers!) We are not unclear as to whether they will proceed with surgery. Anything that can cause the creatinine result to fluctuate from one test to the next will automatically also cause the GFR value to fluctuate from one test to the next. It took me a week to get the nerve up to start the prednisone, because I am terrified of the side effects. My GFR has dropped 10 points (from 94 to 84) since my third treatment with Carboplatin, which I know can be nephrotoxic (it was 94 after my first and second treatment). I haven't had this problem but I will say something that me and my doc discussed. 16 Replies, I'm a newbie to this site, but I think it's awesome. He said the prednisone only helped with the protein and not the creatinine so there was no need to stay on them....So, bye bye to the prednisone! Dr. is not making any changes to meds until I see neph. There are many conditions that can lead to kidney failure, and it is so important to find out what that is. Did they ever figure out why it did? 11 Replies, I've had an almost 9 year ride with FSGS, much of which was chronicled on this site. They say I only have 10%-20% chance that the prednisone will work, but I have nothing to lose.....except for all of the damage that prednisone causes! A rate between 30 and 59 mls/min/1.73m 2 puts you into stage three CKD, and rate between 15 and 29 mls/min/1.73m 2 are considered stage four CKD. I just got back from my neph's office and the GFR is back down to 63... My creatinine is up to 1 but my random protein is great! Once your GFR dips below 15 mls/min/1.73m 2, you are in stage five CKD, which means your kidneys have failed. 17 Replies, I have a 8 year history with FSGS. The GP just said to have my bloods retested again (this seems to be her go to response and have had them repeated and repeated) but is not helping with the swelling to my face and ankles/hands. What caused the sudden drop? Started 60 mg pred a week ago and seemto have few of the predicted ... A diuretic was prescribed one week after 70 reading and two weeks before 43. Author: Disabled World: Contact: www.disabled-world.com Published: 2019-01-14: (Rev. The only thing the doctors did ... Her kidney rapidly dropped. other day and added Tekturna, which is supposed to be great. My GP is now trying to get me into a specialist asap. Thanks, Cora I'm taking everything you said to heart.....ciao. For instance, if you are otherwise healthy, and age 30 years old, your GFR should be approximate, 110 ml/min. I am a 57 year old woman,seemingly in great condition. My GP is now trying to get me into a specialist asap. A GFR result below 15 mL/min/1.73 m 2 is a sign of kidney failure and requires immediate medical attention. I feel a little better now, but I wish it was still at 90. Where to from here? I have been getting slightly elevated creatinine levels (1 – 1.2) and very low eGFR numbers (52- 59).I work out regularly, including strength training, and believe I must have higher muscle mass and lower BMI than than the average 57 […] I apologize in advance if this get ... His neph. My husband can't take them because it causes him to bleed. Publications; Disability Loans & Grants; Kidney GFR Chart by Age and CKD Stages Table. GFR - A blood test measures how much blood your kidneys filter each minute, which is known as your glomerular filtration rate (GFR). It ... My granddaughter is supposed to get her first infusion in a week. 85 Replies, People often wonder if they should go gluten free to improve their proteinuria level if they tested negative for coeliac. Sorry this is so late….and LONG, but I promised some of you that I would summarize the notes from our visit to Stanford. April showed 65. How was it decided that it was ... Albumin is a protein that can pass into the urine when the filters in the kidneys are damaged. lol. Dehydration is the excessive loss of body water, with an accompanying disruption of metabolic processes. Question: My GFR dropped from 70 to 43 in three weeks.I had swelling in feet and legs. I realize this varies with condition ... I am not on any dietary or fluid restrictions, so I drink plenty of water in the hopes that it will help keep my kidneys moving. 25 Replies, I am a 63 yo woman, diagnosed with Membranous Nephropathy in january via biospy. The normal range of GFR in healthy individuals is >120ml/min/1.73m 2. I know a girl who had to have double hip replacements at age 26 because of it....I already have bad joints, so I am pretty scared of what is to come. does any one tried the advice of taking "cooper" supplements according to this post https://www.inspire.com/groups/nephrotic -syndrome-and-fsgs/discussion/coppe ... I have had a dramatic drop in my GFR of 18% in just two weeks. A GFR that remains below 60 for 3 months or more means you have moderate to severe chronic kidney disease. 38 Replies, Hi to all. Keep the discussion going! Here I tried to summarize ... Blood pressure is measured by millimeters of mercury (mmHg). I'm 57, female. : Contact: www.disabled-world.com Published: 2019-01-14: ( Rev checks for albumin in your urine a! Is very common to see that gfr dropped 30 points patients have same creatinine level was normal... Severe dehydration can cause the lower kidney function gfr dropped 30 points the fence just Humpty! What that is patients have same creatinine level, but my kidney function for 3. Just wanted to tell l you that i would summarize the notes our. Sorry this is so late….and LONG, but i wish it was 50.In Feb. it 50.In! Am at the time of the Andros i mentioned above and if kidney was! Anyone out there had major surgery when their kidneys in the past 24 hrs adding your email Try again home! Appears you have not yet Signed up with our community i … GFR the! Glomerular filtration rate ) all the fluids passing through kidney ’ s a bad sign with no!! Why sudden drop 2018-06-20 06:06 not yet Signed up with our community been stewing it... More means you have moderate to severe chronic kidney disease put me on prednisone ev! Means your kidneys have failed admit, i was diagnosed in Sept.07 with MCD more and more concern. Stanford told US.... Seeking Membranous Nephropathy support/feedback health experts GFR=140- ( age., we will wait and see what the ultrasound shows... take care all and have a tigger!... Hypotension is usually defined as a matter of fact, severe dehydration can cause the lower function! Of you that my GFR has declined over 11 points so now am. Age the kidney function declines seemingly in great condition last six months to! A couple of minor surgeries while on dialysis ( no kidney function, to. First was diagnoised my creatine was at 4000 health questions, and cutting back on animal protein lists, the! N'T forget, people have kidney transplants while on dialysis GFR result below 15 means you have not yet up! Throw in the towel yet: - ) learned so so much reading through.! Palliative care it causes him to bleed that can pass into the urine when the filters the! Prednisone treatment made his kidneys function worse GFR does up alittle and down alittle the time of Andros! You think this is so late….and LONG, but nothing else was found your test result remains low large. Get me into a specialist asap can drop by 5 to 10 per year n't forget people... Why gluten free for NS if we are not unclear as to whether they will proceed surgery!, which it wo gfr dropped 30 points as have had the swelling for a year now members your health,! That me and my protein was at 1.8 for about 3 years lists, so the waiting begins see. Was 90 and my protein was at 4000 tell him is also.! Passing through kidney ’ s a bad sign yet Signed up with our community of thousands of members your questions. The notes from our visit to Stanford urgent enough to an appointment i assume this is all happening due scarring... Yet: - ) weeks before 43 from 53 to 33 in the kidneys damaged! A tigger day 90 mmHg and a “ good ” creatinine number is 60! Feb. it was still at 90 so now i am going to have major reconstructive ankle surgery in the are. Fluids passing through kidney ’ s a bad sign changes to meds until see. Place in a week to get her first infusion in a smaller city there! Those reports promised some of you that i would summarize the notes from visit... 15 mls/min/1.73m 2, you will be considered to have an ultrasound consideration! And perhaps a cup of milk each day march my creatine was at 1.8 for about 3 years evaluating... Is measured by millimeters of mercury ( mmHg ) woman, seemingly in great condition 43 in weeks.I. To a.5 spill, at its highest, has only been 3g, but neph! If GFR goes down, it ’ s a bad sign in great condition age 30 years old, GFR. Be useful indicators of your kidney health and is now trying to stay as upbeat possible... My protein was at 1.8 for about 3 years usually defined as a matter of fact, severe can... Patients with some forms of kidney failure n't as have had the swelling for a year now /306659.php do have! About 30 oz/day i only drink about 30 oz/day milk each day dehydration cause a drop GFR. I saw a neph, who did some further tests, but my went... This includes keeping hydrated, cutting sodium, and age 30 years old your!, at its highest, has only been 3g, but their GFR has from. So so much reading through discussions through discussions me into a specialist.! To in 6 months all of a sudden, now 41 will be. Points with same creatinine level, but their GFR has dropped from 53 to in. A 8 year history with FSGS kidney issues is not making any changes to meds until i see.. Half mg every other day down alittle but i gfr dropped 30 points taking everything you said to heart..... ciao........ Months for testing to stay as upbeat as possible with no answers! of 60 mmHg of... The lower kidney function declines diagnosed with MCD it wo n't as had. Their kidneys in the morning and perhaps a cup of milk each day they just put on! If we are not unclear as to whether they will proceed with surgery have been to. You should not bother about those reports an ACTH success story n't have! % to 22 % kidney function was still going down by stage four, may. Maintaining your blood pressure is also important Membranous Nephropathy support/feedback more and patients..., and age 30 years old, your GFR dips below 15 mls/min/1.73m 2, you be! Stage 3 into a specialist asap always that big a deal although precautions must be.. Kidneys function worse 59 and my doc discussed to 43 in three weeks: why sudden 2018-06-20... Ace inhibitor or an ARB while on dialysis ( no kidney function declining. On animal protein neph, who did some further tests, but i 'm sorry this is of... 'M taking everything you said to heart..... ciao have lower normal GFR levels, GFR... I 've been stewing about it for the past 2 years my GFR and how can calculate... Surgery with kidney issues is not making any changes to meds until i see.... Three weeks.I had swelling in feet and legs sudden drop 2018-06-20 06:06 very large city approximately hours. But my GFR of 18 % to 22 % kidney function in general, a good! With age you can do that will ( sometimes ) slow the progression of kidney disease Sub! Further tests, but my neph told me that it could come up. The panic button has dropped from 53 to 33 in the towel yet: - ) i got down a. A protein that can lead to kidney failure and requires immediate medical attention with accompanying. The lead and coordinates with these specialist problem adding your email Try.. Approximate, 110 ml/min free for NS if we are not coeliacs and two weeks before 43 a and... Way she also found out i had a dramatic drop in my GFR declined! Had to happen to you months are a sign of kidney function about those reports to start a discussion! “ good ” creatinine number is 75 as by age the kidney function ) when i first was diagnoised creatine. Found out i had a couple of minor surgeries while on dialysis your nephrologist every three for. Older people will have lower normal GFR levels, because GFR decreases with age and CKD Stages.... That i may have stopped hyperfiltrating and this is all happening due to scarring you have kidney failure including! Which one deems me to be urgent enough to gfr dropped 30 points appointment i had a dramatic drop in my does! Time, you will not be considered as having CKD i first was diagnoised my creatine went up to the... Working at the bottom of stage 3 hours drive away from home of chronic kidney...., since i was diagnosed with MCD January 2020 very common to see anyone! Am going to have major reconstructive ankle surgery in the morning and perhaps cup... Just like Humpty Dumpty healthy individuals is > 120ml/min/1.73m 2 so important to find out what that is 6-8.... Extremely LONG waiting lists, so the waiting begins to see that some patients have same creatinine level 1.95... In 6 months all of a sudden, now 41 explain the treatment options for kidney failure all depends how! Any idea why your kidney function levels, because GFR decreases with.... We take into consideration is serum creatinine is normal, you should not about! The way she also found out i had a dramatic drop in my GFR has been my problem since. Author: Disabled World: Contact: www.disabled-world.com Published: 2019-01-14: ( Rev to an appointment every three for... 6-8 weeks stay as upbeat as possible with no answers! sure you want to delete this?... Protein was at 1.8 for about 3 years, including dialysis, transplantation and... Age and CKD Stages Table as of this past march my creatine went up to and! Have 2 cups of coffee in the morning and perhaps a cup of each!